Nicola Bedlington

Special Adviser and Previous Secretary General
European Patients Forum (EPF)

Nicola joined the European Patients’ Forum in June 2006 and led the organisation until April 2019. She is currently working as a special advisor to EPF and has set up her own company focusing on sustainability.

Under her leadership the organisation grew from 23 to 74 umbrella patient organisations covering the spectrum of disease areas.  Nicola was the Co-ordinator of EUPATI, an IMI funded project focussing on patient education in the life cycle of medicines (2012-2016) which became an EPF programme and is now a Foundation. She is also co-leading a new IMI project called PARADIGM on patient engagement in medicines development. 

Nicola is a co-founder of the Patient Access Partnership (PACT) a multi-stakeholder initiative to promote equitable access to healthcare. She is the chair of the Patient Advisory Group for the European Society of Radiology, a member of the European Health Forum Gastein Advisory Board, and co-chairs the EFPIA Patient Think Tank and the Patient Medtech Dialogue. She plays an advisory role for organisations and companies advancing on patient involvement and patient engagement. She has authored numerous articles and contributed to several publications on patient empowerment and led an unprecedented European campaign to advance this on the political agenda.  More recently she spearheaded EPF ‘s campaign on universal healthcare, helping to drive and prioritise the SDG on health in Europe.

Previously, Nicola was the founding Director of the European Disability Forum, an umbrella organisation uniting disability NGOs (1996 to 1999), and prior to this she worked as an expert for the European Commission, in the  HELIOS Programme, a major European Commission Action Programme promoting equal opportunities for disabled people (1991-1996).